Privacy Policy

Collection of Personal Information

We may collect the following categories of personal information about consumers who use our Services:

• Contact details, such as name, email address, mailing address, phone number, and username.
• Demographic information, such as age, race, gender, and date of birth.
• Professional information, such as job title and company name.
• Network activity information collected via cookies and other tracking technologies, including IP addresses, mobile advertising IDs, other unique online identifiers, and related browsing information.
• Health-related information, such as information you submit when sharing a story, participating in certain programs or questionnaires, or using certain Services.
• Inferences drawn from any of the information listed above.

Purposes for Processing Personal Information

We collect, use, and disclose the above categories of personal information to:

• Provide our Services to you.
• Manage, analyze, and improve our Services.
• Communicate with you, including responding to requests, processing and soliciting donations, and sending updates about our Services.
• Engage with current and prospective advocacy organizations, vendors, and third parties.
• Analyze and better understand consumers’ needs, preferences, and interests.
• Conduct internal business analysis and research.
• Advertise and promote our Services.
• Comply with our legal and regulatory obligations, and enforce our rights and policies.
• Administer, monitor, and secure our information technology systems, websites, applications, databases, and devices, including detecting and preventing security incidents and fraudulent activity.

We may also anonymize personal information and analyze those data for statistical or other purposes permitted by law. When we do so, we take reasonable measures to ensure that the information cannot be associated with an individual, and we will not attempt to reidentify the information except to determine whether our deidentification processes satisfy applicable legal requirements. Once deidentified, the information is no longer personal information and is not subject to this Privacy Policy.

Sources of Personal Information

We collect personal information directly from consumers when they interact with us. We also collect personal information from vendors and third parties, when they provide information to us. Finally, we collect personal information from vendors and third-party providers of cookies and other tracking technologies used on our Services.

Disclosure of Personal Information

We disclose the categories of personal information listed in Section I as detailed below:

• To our vendors. We disclose personal information to vendors who process personal information on our behalf, including providers of website hosting, information technology and infrastructure, data analytics and modeling, email delivery, order fulfillment, auditing, marketing and analytics services, and other services. We impose contractual limitations on vendors’ use of personal information collected in connection with providing services to us.
• To third parties for marketing purposes. We disclose personal information to third parties, including marketing and analytics providers and other organizations, to support our fundraising efforts and the fundraising efforts of third parties.
• To other third parties, at your direction or with your consent. We may disclose personal information to other third parties at your direction or with your consent.

We may also disclose personal information in the following contexts:

• Pursuant to a change of control. We may disclose personal information to a successor entity or purchaser in connection with a merger, consolidation, or other reorganization, or the sale of all or a portion of our assets. In such cases, we will seek assurances that the successor entity or purchaser will process personal information in accordance with this Privacy Policy.
• For legal purposes. We may disclose personal information to protect our rights, defend or pursue legal claims, investigate or prosecute illegal activities, comply with subpoenas, court orders, governmental inquiries, legal processes, or other legal obligations, or to protect the rights, property, or safety of us, you, or others.

We may also disclose anonymized data to any other entities to the extent permitted by law.

Children’s Privacy

Our Services are not intended for children under age 16 and are not designed to attract the attention of children under age 16. We do not knowingly collect personal information from children under age 16. If you are a parent or guardian and believe we have collected personal information from your child in error, please contact us immediately at info@mybrainguide.org so that we can make reasonable efforts to promptly remove such information from our systems.

External Links

Our site contains links to other websites that are owned by third parties. If you use these links, you will leave our Services. We are not responsible for the content or privacy practices of any linked websites, and we make no representations or endorsements about them. If you decide to leave our Services to access third party links, please be aware that this Privacy Policy will no longer govern. You should review the applicable terms and policies, including any privacy policies, of such websites when you visit them.

Security & Data Retention

We implement reasonable security measures to promote the confidentiality, integrity, and availability of the personal information we collect. Such measures are designed to protect your personal information from loss, unauthorized access, disclosure, alteration, or destruction. However, while the security of your personal information is of the utmost importance to us, we cannot guarantee the security of any information you choose to disclose online. Any information you choose to disclose to us is done at your own risk.

We retain personal information for the period reasonably necessary to provide our Services to you, support our business operational purposes listed in Section II, and ensure compliance with applicable law.

Additional Disclosures for EEA/UK Residents

This section provides disclosures applicable to residents of the European Economic Area (“EEA”) and the United Kingdom (“UK”):

• Legal Basis for Processing. We generally rely on our legitimate interests as the legal basis for processing personal information of residents of the EEA and UK. These interests include operating our organization, soliciting and accepting donations to further our charitable purposes, communicating with consumers, and spreading awareness about Alzheimer’s disease prevention, early detection and diagnosis, and access to treatments for all. In certain circumstances, we may rely on another legal basis, such as consent, and will provide additional details or request affirmative consent where required.
• Data Subject Rights. Residents of the EEA and UK have certain rights with respect to the processing of their personal information, subject to applicable exceptions, including:
  • Access. You may request access to your personal information.
  • Correction. You may request correction of inaccurate or incomplete personal information.
  • Deletion. You may request deletion of your personal information.
  • Restriction of Processing. You may request that we limit the processing of your personal information in certain circumstances.
  • Data Portability. You may request to receive your personal information in a structured, commonly used, and machine-readable format and transmit it to another controller.
  • Object to Processing. You may object to our processing of your personal information in certain circumstances.
  • Withdraw Consent. Where processing is based on your consent, you may withdraw that consent at any time, without affecting the lawfulness of processing prior to withdrawal.
  • Complain to a Supervisory Authority. You have the right to lodge a complaint with a supervisory authority.
• Exercising Data Subject Rights. To exercise your data subject rights, you may email us at info@mybrainguide.org or contact us through the applicable link on our Site. We may decline to honor a request where an exception applies under applicable law and will respond in accordance with legal requirements.
• Profiling. We do not use automated processing, including profiling, to make decisions that produce legal or similarly significant effects.
• Cross-Border Data Transfers. UsAgainstAlzheimer’s is based in the United States, and personal information may be processed in the U.S. or other regions that may provide a lower level of privacy protection than your country of residence. We take appropriate safeguards to protect personal information during cross-border transfers, including the use of standard contractual clauses where required by law. For more information or to obtain a copy of such safeguards, you may contact us at info@mybrainguide.org or through the applicable link on our Site.

Additional Disclosures for Residents of Certain U.S. States

This section provides disclosures applicable to residents of U.S. states with comprehensive privacy laws that apply to us.

• Data Subject Rights. Residents of certain U.S. states have rights regarding the processing of their personal information. Depending on the state of residence, these rights may include the right to access, correct, or delete personal information, or to opt out of certain types of processing.
• Colorado Residents. Colorado residents have the right to access, correct, and delete their personal information; obtain their personal information in a portable format; opt out of the sale of personal information; opt out of processing for targeted advertising; opt out of profiling in furtherance of decisions that produce legal or similarly significant effects; and revoke consent to certain types of processing activities.
• Minnesota Residents. Minnesota residents have the right to access, correct, and delete their personal information; confirm whether their personal information is being processed; obtain their personal information in a portable format; opt out of the sale of personal information; opt out of processing for targeted advertising; opt out of profiling in furtherance of decisions that produce legal or similarly significant effects; question the results of profiling decisions; obtain information about profiling decisions; obtain a list of specific third parties to whom personal information has been disclosed; and revoke consent to certain types of processing activities.
• Exercising Data Subject Rights and Authorized Agents. To exercise applicable data subject rights, you may email us at info@mybrainguide.org or contact us through the applicable link on our Site. Residents of some states, including Colorado, may authorize an agent to submit requests on their behalf. To verify identity and protect personal information, we may request additional information, such as proof of signed authorization or direct confirmation from you. We may decline requests where an exception applies under applicable law and will respond in accordance with legal requirements.
• Appeals. If we deny your request, residents of certain states may appeal our decision by contacting us using the methods described above. Appeals should reference the original request so we can properly review and respond. Appeals will be processed in accordance with applicable law.
• Processing for Targeted Advertising. We process personal information for targeted advertising purposes as defined under applicable state privacy laws. This may include disclosure of personal information to third parties for marketing purposes, such as information collected through cookies and tracking technologies (including IP address and browsing data), as well as names and contact information of donors to support fundraising efforts. You may opt out of such processing by contacting us at info@mybrainguide.org or through the applicable link on our Site.
• Opt-Out Preference Signals. Certain browsers or devices allow users to set signals indicating a preference to opt out of the sale or targeted advertising of personal information. We recognize such opt-out preference signals where required by applicable law. However, our websites are not currently configured to recognize “Do Not Track” signals.
• Profiling. We do not process personal information for profiling in furtherance of decisions that produce legal or similarly significant effects.
• Applicability of State Privacy Laws. Certain state privacy laws, including the California Consumer Privacy Act (CCPA), do not apply to 501(c)(3) non-profit organizations such as UsAgainstAlzheimer’s. Accordingly, the disclosures in this section do not apply to consumers residing in states whose privacy laws do not apply to us.

Other Disclosures

• Unsubscribe. To unsubscribe from promotional emails from UsAgainstAlzheimer’s, you may click the “Unsubscribe” link located in the footer of any promotional email you receive, or send an email request to unsubscribe@usagainstalzheimers.org with the subject line “Unsubscribe.”
• California Residents Under 18. If you are under the age of 18 and are a registered user of our website, you may request removal of content or data that you have posted by contacting us at info@mybrainguide.org. Please note that removal requests may not result in complete or comprehensive deletion if the content or data has been reposted by another user.
• Direct Marketing Disclosure for California Residents. California’s “Shine the Light” law requires companies to disclose certain information upon request regarding the sharing of personal information with third parties for direct marketing purposes and to allow consumers to opt out of such disclosures. To make a request, please contact us at info@mybrainguide.org with the subject line “Shine the Light Request.” Requests are processed in accordance with applicable law.
• Disclosure for Nevada Residents. We sell certain covered information as defined by Nevada Revised Statute § 603A, as further described in Section IX. Nevada residents may opt out of the sale of their covered information by contacting us at info@mybrainguide.org.

Changes to Policy

We may update our Privacy Policy from time to time. When we do so, we will post the updated Privacy Policy on this page. When we make material changes, we will notify users, such as by posting a prominent notice on our homepage or by sending an update via email.

Contact Us

To contact us, please submit any questions via our Contact Us page. You can also contact us by email at info@mybrainguide.org or by mail at:

UsAgainstAlzheimer’s

5614 Connecticut Avenue NW, #288

Washington, DC 20015-2604

Last updates: 09/10/2024